I’m back

I’m back! Interestingly I took a teeny tiny 14-month hiatus from this blog just after posting an entry entitled “I am not done yet” but that sums up my personality quite nicely..
So what happened? Well on the one hand I broke up with my partner, spent two months doing an internship to get a job I ended up not taking, I switched medications yet again and my plan to learn to play the guitar never got going so I didn’t do so well. On the other hand I am on my new medication for about a year now and it is working acceptably so far, I got back together with my partner, I found a new job which I am holding for over eight months now and my old band from two articles down reunited so that’s nice.
Overall many things in my life are going better than ever but everything is shaky and I am still far away from considering myself mentally healthy. In the end I can’t promise I will write new articles very often but I will try to keep it frequently…ish.

But I didn’t want my first article since my break to be entirely about myself, so here goes;
Before and during my work for this blog I spent a lot of time reading somewhat similar blogs dealing with mental illnesses or other chronic diseases. While I found many inspiring stories sometimes there was something about them that I found a bit concerning but I couldn’t quite figure out what it was until I read an article that was something along the lines of “10 things about depressed people you may not know” (I don’t recall the exact title though). It said that on average people with depression have a higher IQ, are more empathic, more sensitive and so on. It all sounded like the author was trying to say that the depressed were some sort of superior beings.
Now obviously that was not what the author was actually saying, I suppose he was trying to break negative stereotypes about people with mental illnesses – which is great of course. But it was in that moment that I realised that many articles I read in the past had a similar connotation. They painted the mentally or chronic ill as warriors bravely facing an invisible yet terrible enemy while at the same time struggling with enormous stigma from those around them instead of the help and respect they deserved and described in what ways these adverse experiences form character. They also often involve calls for solidarity among those affected, to reach out and provide assistance and community only someone who knows what these illnesses are like is able to provide.

Just to be clear, I’ll be the first to say that my own articles on this blog are no exception. As I said, the intent is to break stereotypes and stigmas about those affected by mental illnesses, such as that they are dumb or weak, to invoke empathy and to try to find the silver lining, the one positive aspect of such a horrible situation. The problem is that to some people, on a subconscious level, this all starts to sound a bit appealing. Of course none of these writers are saying that having a mental or chronic illness is a good thing or something that anyone is supposed to have. In fact most go out of their way to highlight how horrible it is. But again, I am talking about a subconscious level here. No one wants to be depressed but who wouldn’t want to be a brave warrior with above average IQ that is part of an empathic community of peers willing to help?

There are two problems here; for one, we are dealing with false premises. There might be a general tendency of depressed people having a somewhat higher IQ and more empathy but that doesn’t mean there aren’t many of us that are dumb as a rock and/or giant assholes. And while adversity might form the character of some people in a positive way, it can bring out the worst in others. And while self-help groups or relevant internet platforms might provide help and a sense of community to many, which is fantastic, they can also instill a sense of hopelessness in others because they essentially show you a broad range of people who are failing at overcoming the same difficulties you have. Of course this is a false impression because the “success stories” that would be needed to balance out the picture are not there precisely because they are healthy now – but that doesn’t change the fact that being confronted with others in the same condition as you can be counterproductive. Not to mention that in many cases such as those with social anxiety the mental illness itself keeps you from being able to connect with others, even if they know what you are going through.

The second problem is what these false premises can cause. I found that the thing about many mental illnesses like depression is that they can make you very receptive to certain messages while you tend to block out others. And a common symptom of depression is the complete inability to imagine that you will ever feel better again. Someone who is already affected by depression may, again subconsciously, get the impression that instead of walking the often incredible hard journey back to a state of health they can’t even imagine, it might just be preferrable to stay the sick but brave warrior, while ignoring the authors statements about how awful their disease is and how much better off they would be without it.
So what can we do to avoid this? Honestly I am not sure. We obviously should not stop trying to break stereotypes or to convince the depressed that they are not alone. But while doing so, we should remember that good intentions can always backfire, sometimes with terrible results.

Blogger Parade: Music

Blogger Village 2

Today I am taking part in a project with the network Blogger Village which is called Blogger Parade, where each member of the network writes a post about a topic drawn from a tea pot. This time the topic is music and I chose to write about my time as a musician. I hope you like it.

When I was eight I watched a concert of the local school of music’s teachers. Afterwards I told my father I wanted to learn how to play an instrument. He was very supportive, bought me an electric piano, paid for lessons, the whole deal. Even though I enjoyed playing, I enjoyed practicing a lot less but I always managed to learn my material in time. I also sang in the school choir.

When I was twelve I was approached by an old friend of my family. He was a musician that had started a band for his son and his two cousins of the same age and he wanted to recruit me. Later he gave up his spot for someone as old as us and we moved from covers to writing our own songs. We even recorded an EP – properly, not in our run-down practice room.

But then in secondary school, there was no choir and it was a wretched place in general. Most of the groundwork of my depression was laid there but I was still a happy kid outside of school. When I entered High School (or rather my country’s equivalent), I chose one with a choir and band. I was so hopeful that this was the place where everything would turn around.

But it didn’t live up to my enormous hopes, how could it? By the end of the first year, I was in my first major depressive phase and that was the end of my days as a musician. I kept playing for some time, but my passion was gone. For a long time, I considered it yet another thing I never followed through with, a failure in a long list of failures.

But now I consider it yet another thing my depression took from me. It wasn’t my fault. I could try to start again but I know I don’t have the energy, discipline or passion to do it. Will that ever change? I really don’t know.

Beyond that, I also realised that it wasn’t a failure at all. Even though I no longer play, I still achieved something. Not just the recording, I also made treasured memories and formed deep friendships. I also had an impact on the people around me. Maybe someone out there had their first kiss during one of our songs, or their first break-up.

Also, I still experience music in a special way. Did you know musicians are one of the few people whose profession can be guessed from brain scans? Sometimes, when my illness takes over and quenches my emotions, music is nothing but noise to me. But often it is one few things that that can snap me out of a phase or make a terrible time just slightly less terrible. I wonder if that were the case had I never picked up an instrument.

If any of you ever dropped something you put a lot of time and energy into and feel like you failed, consider how your life might look like without it. The things you experienced, the lessons learned, the joy and pain and everything else it brought you. As long as you took something away from it, you did not fail.

The Clockwork of Misery

One of the things depression has up its sleeves to get you down is a constant feeling of inadequacy. Take my last post for example, The -lessness. It was supposed to be about all the things that depression takes away but in the end, it focuses mostly on emotion and motivation. I should have written about so much more, like sleeplessness, lack of confidence and so on. I also don’t think I fully captured what I wanted to say. If you already know what I mean you might understand but if you don’t then I am not sure I made it clear. And the different sections don’t flow into each other naturally and some wordings just sound weird. Every time I read it I could kick myself. I understand that mostly it’s the old “Depression lies” but understanding it and feeling it are two different things.

And if it wasn’t enough, this is where my anxiety kicks in. What if it is the first post someone reads on this blog and decides to move on because of it? It is yet another entry about mental health. What about readers that are interested in my other topics? What if the readers I already have decide that this blog isn’t worth it after all?
For someone else this might be a reason to do better next time, but my lack of energy makes it hard for me to imagine a next time. And my pessimism tells me I won’t do better. And my guilt tells me how horrible it would be to leave yet another project unfinished.

And so, all the different aspects of my depression work together like a clockwork of misery.

But it is possible to disrupt it. Right now, I am trying to make amends by writing this post, and maybe it will make me feel better. And if not, at least I tried. Sometimes trying and failing makes me feel even worse than not trying, but in the end, I don’t see what else I could do. Often I don’t have the strength to try, but I have learned it is important to forgive myself for that.

The -lessness

Usually, medical descriptions of mental health problems are pretty cut and dry, and they should be. They should not require an elaborate explanation, they should be short and easily understandable. While this is not necessarily a bad thing, such a depiction will never truly capture what a mental illness feels like, making it all the more important for healthcare professionals to possess a certain degree of empathy, so that they can look beyond the buzzwords of their textbooks and really understand the patients in front of them.
While many mental health blogs are littered with stories of being horribly misunderstood by the ones that are actually supposed to help us, I am not writing about that today – not for lack of having experienced my own share of thick-headed doctors, believe me.

Today I want to talk about a description of depression so accurate that it is all the more impressive it came from a doctor, which is “die Krankheit der -Losigkeit”. Roughly translated it means “the sickness of -lessness” or “the sickness of lack of”.
Most people know that depression includes a lack of happiness but it is more than that. While depression includes phases of panic, anxiety and sadness, sometimes it just makes you completely numb.

Someone who has never experienced this kind of indifference might believe that while not ideal, it is at least better than raging agony but in fact it is its own kind of horror. Obviously being sad is not a good thing but it is something intense, something that makes you feel alive. Feeling pain gives you a sense of direction, something to escape from.
Depression entails a lack of motivation and while part of that stems from the fact that depression sucks all energy out of you, there is another aspect to it. Just as much as energy, motivation requires some kind of goal. But when indifference is all you feel, there is no point to any goal. There is no point to anything. If you don’t feel anything, there is no reason for you to do anything.

Depression does not just make you feel bad, it takes away all meaning. All struggles and strivings, trials and triumphs, victories and failures, all the highs and lows that make up a full life, they all mean nothing if you are depressed. It really is the lack of everything.

Captain Hope

My future is more uncertain than ever before. I am supposed to start a new line of work soon but time is running out and I am afraid I have myself to blame for the way it is going wrong. And even if it works out, I don’t know if I have the strength to pull it off. My family is frustrated, my meds aren’t balanced, things with my partner are not going well and life just generally sucks. I wanted to write a post entitled “Hopelessness” yesterday but it would probably just have consisted of “Yes”.

Some writers have the talent to present their readers with a new perspective on life, one that doesn’t sound like a stale pep talk but instead gives us strength to keep going, not because we fear what follows us but because we desire what lies ahead. I could try to capture this spirit but right now, my guilt makes me reject all thoughts that would lighten the burden. I really am in trouble and it is my fault. I have strategies that might make me feel less terrible but I feel like I deserve feeling terrible.

If any of you are in a similar position, remember the old saying “Depression lies”. Depression has a way of always making life appear grimmer than it is. That is very exhausting in itself, but it becomes really problematic whenever you start believing it and basing your decisions on it. Neither you nor I deserve to feel terrible. And even if you are in trouble, being miserable will not help to change that. Recalling this might not be helpful immediately, but it might help with using your own strategies, whatever they may be.

Sometimes really unexpected things help to break your negative train of thought. I tried categorizing my posts and accidentally emptied two of them. If I had deleted them, no problem, deleted posts can be restored with one click. But I somehow updated my posts to be empty and everything in it was gone. You might scold me for not having backups, but silly me believed my web hosting service would take care of that. I mean what the hell, you can update a post but you can’t revert to previous versions? That is a basic feature! And how did that happen in the first place? I never deleted anything!

At first I felt even more terrible but somehow, the anger that surfaced after I realised that my work was really gone and my host had not accounted for something like that helped me to refocus. This post was going to be really short and without any hope but now it is longer and at least a little upbeat. Even though I feel like I took a too deep of a dig into the cliché drawer.

Stigmadee, Stigmadum

Writing about the stigma attached to mental health problems is the 101 of mental health blogs, to the point that it is hard to say anything that hasn’t been said a hundred times already. While the situation is still bad, a broad front ranging from healthcare providers to patients, from relatives to celebrities is trying to raise awareness and more importantly, to educate the general public.

While this is definitely a good thing, it can sometimes lead to unintended results. I remember a conversation at a family get-together somehow shifting to a person I didn’t know and someone saying “no, she no longer has that job, she had a burnout”. With a condescending expression, one of my aunts said: “Burnout? From what?”

That was not the usual prejudice one would expect. If that conversation had taken place a few years earlier, the reaction might have been something along the lines of “oh she should just get it together”. But it wasn’t, because my aunt knew what burnout is, what causes it and that you can’t just dismiss it. And yet she managed to react in a way that makes my toenails curl up. She didn’t think bad of that person because having a burnout is a sign of weakness, she thought bad of that person because she apparently didn’t earn her burnout by hard work. The more I think about it, the more I think that this is a far worse reaction.

I am not even going to elaborate about how everyone with an illness deserves empathy, no matter how they got it. I am not going to elaborate on how what is perceived as a burden by one person is perceived differently by another.
What really grinds my gears about this is how an illness is seen as an achievement. Got burnout? Yeah that sucks, but at least it shows you are a hard worker! Well done! You got burnout? Well you don’t deserve that, you cheater!

There are just so many things wrong with that. First off, the idea itself is disgusting. It turns suffering from something that should be alleviated into a commodity that is needed to justify emotions or mental states. Secondly, this type of pressure environment is part of what drives people into burnout in the first place. Thirdly, this can lead to the idea that only people that have “earned” their suffering deserve help, treatment and empathy. And finally, this type of thinking can be expanded onto almost everything. You have depression? You never had it bad enough to warrant that! You have PTSD? What did you experience that was sooo traumatic?

We often hear complaints about how we live in a performance-based society that makes everything revolve around how much you can accomplish, that dehumanizes us by devaluating all other aspects of our individuality. But in many ways we have moved beyond that and live in a suffering-based society, where your status and your rights are dependent on how much damage you are willing to take, how much agony you are willing to put up with. This type of thinking is not just related to mental illness, this concerns everyone!

I guess I should end with some sort of solution. Well there is no simple solution to changing the ways of thinking of one person, let alone an entire society. I could end it with the old “If you want change, change yourself first” but I have an irrational aversion to these types of motto calendar catchphrases. I dunno, I guess thanks for reading and maybe thinking about it.

Slightly random Sex Suggestions

Usually I don’t like the sort of “Top 5 tricks epic fail cute kittens compilation” lists that show up on blogs whenever the writer is out of ideas for a proper article. However, today I am the writer that is out of ideas, so that is what you will get.

One of the hardest parts of depression is that eventually hardly any topic can really excite you. Fascinating science? Meh. Beautiful art? Snore…
Sometimes I can use this as a measurement of how well I fell in a particular situation. I love to immerse myself in music, but when I am in a depressive phase I just can’t. It is nothing but annoying noise. However, there are a few things that almost always work, even if they don’t work as well as they would if I were healthy. One of those are really hot saunas. Another one are things that had moved me before my depression first started. Even during times where I was completely unable to cry, no matter how bad I felt, I cried like a baby while watching The Lion King, because I knew it since I was a child. And another thing that almost always works is sex.

Depression can have different effects on the libido, sometimes it completely kills it, sometimes it puts it into overdrive. In my case, sexuality is one of my few ways to combat my anxiety and depressive phases. Right now, my medication has side effects that make sex very difficult, nevertheless it is an important topic for me and I always knew that if I ever turned my idea of a blog into reality, I would write about sex. I generally have little shame talking about this subject, especially in an anonymous context. I hope none of my readers are put off by this, but since you read until this point, you seem to be fine.

As i mentioned in the beginning, I am out of ideas for a proper article right now, so here is a rather random list of suggestions for your sex life.

1. Don’t think about what you look like
While sex is a matter of practice, it is even more a matter of the mind. My most important tip is, don’t worry too much, especially about what you look like. There is nothing more distracting than trying to look “good”, and nothing sexier than someone that can let loose and just doesn’t care.

2. Wear socks
Traditionally, wearing socks is a big turn off, but it might be time to question this. Studies have shown that having warm feet increases the chances of an orgasm, so keep them on when you get it on.

3. Be observant
It is important not to be distracted by too much thinking, but one thing you should keep in mind is to observe your parnter(s). You don’t have to focus your attention on him/her all the time, in fact sometimes you should be able to focus on nothing but how it feels for you, but if you want it to feel good for all involved you should learn to notice certain cues. Watch facial expressions, body language, breathing, sometimes really small things can tell you what you should do next. While communication is key and you should always be able to tell your partner what you want, there is a certain magic in unspoken communication.

4. Lube
Many people think lube is only for anal sex or dryness but that is not true. Lube is awesome and you should always have a bottle ready.

5. Do your research
While improvisation and spontaneity are important, you should always be well prepared. Learn all about contraception, not only birth control but also about preventing STDs. Learn all you can about the anatomical details – both your partner’s as well as your own. Learn about differences of lube ingredients and ph levels, about compatibility with condoms or sex toy materials, about hygiene, in short, try to know everything there is to know. But remember, no matter how much you know, there is always something you don’t know. Always be empathic, respectful and kind.

The Feeling of Defeat

I went to a spa today. I love spas, especially saunas, but I have never been to this one before, which is why it was kind of a big deal for me. My social anxiety is always there, but especially hard in a new environment and going all on my own did not help. But that actually was not the hard part because at least no one bats an eye in a spa if I don’t talk to anyone. The hard part is something I can only describe as the feeling of defeat. Today I did something that is hard for me, something I wanted to do for quite some time and when I did, I enjoyed it. But now that I am at home, it doesn’t feel like a success. It feels like a defeat, it feels as if I somehow lost, was not good enough at enjoying myself. Sure, it was not as fun as it would have been with a friend, sure, I only did three rounds in the sauna instead of the four I was planning on but still, there is no good reason why I feel this way and yet I do.

This feeling is one of the things you don’t expect from depression. It does not really show up in any medical textbook or anything like that, at least not in a way that makes me feel like it is described accurately. Depression makes it difficult to enjoy things and this is true in my case too. Healthy me would have had a lot more fun. But that is not the problem, I did have fun. Maybe not everyone with depression has this feeling, maybe it isn’t even my depression but another issue. All I know is it sucks. But at least I am aware of it. There were times when this feeling made me do stupid things, like drink, make impulse purchases or do other things that would make me happy temporarily, just so that I could look back at my day in the evening and think “Yes, good one”. Of course acting this way catches up with you eventually, one way or another. Now I know that it is best to ignore this nagging feeling and simply try to have a good evening. Even when it feels like I lost the battle of the day.

Something normal, something extreme

For my first “proper” entry I thought I would write about something that is quite often the topic of blogs or AMAs when it comes to mental illnesses, which is simply “If there was one thing you wish people understood about mental illness, what would it be?” Most people would assume that I wish others could understand what it feels like but that is not what I will write about.

For one straight up describing what depression feels will always fall short of the real thing. Describing what an experience feels like is only possible if you can relate it to another experience that your reader has experienced as well. I can describe red by saying red is the colour of this or that. In the case of depression, I could talk about some symptoms like sadness, lack of motivation, lack of emotion, hopelessness and so on or use colourful metaphors and what not. But in the end, it would be a hopeless endeavour. And secondly, even if it were possible, I don’t want anyone else to feel what it is like because I don’t want anyone to experience something like this.

After a while I realised that the first thing I wish people understood was something that took me some time to understand as well, which is that mental illnesses are not something normal taken to an extreme. That sounds pretty nonsensical but bear with me. Many symptoms of mental illnesses are often viewed as character traits, character flaws or emotions that healthy people have as well. Sadness is a symptom of depression, but healthy people experience it too. Lack of motivation is a symptom of depression, but healthy people experience it too. Shyness is a symptom of social anxiety, but healthy people experience it too – some of them at least. For one this is bad because it is often the source of misunderstandings. Healthy people believe they can understand what a mental illness feels like, even though they cannot. Sometimes it is also the source of some of the stigmata that surround mental illness, such as someone with burnout being called lazy or someone with PTSD being called weak.

Thankfully, most outsiders understand over time that they can in fact not understand what it feels like (which doesn’t mean you can’t sympathize) and that it is inaccurate to believe someone with mental illness is weak or does not have enough willpower to overcome it. Often they do so simply because they realise that the intensity, the “quantity” of it all is far greater than anything someone healthy experiences. It hits you like a sledgehammer and trying to “outtough” it is as absurd as trying to stop a tornado with your fist. But that is only a part of the whole story. The most important thing that I wish people would understand about mental illness is that emotions or character traits that are part of a mental illness are completely separate and different from the normal emotions or traits of said person. The idea that someone melancholic is sad and someone depressed is simply “extra sad” or the idea someone shy is shy but someone with social anxiety is “extra shy” is completely wrong. Mental illnesses are not something normal taken to the extreme. Depression can strike the happiest person in the world, social anxiety the most outgoing person in the world.

Another problem is that separating person and illness is not only hard for an outsider, it is often hard for the affected themselves. I once had a friend explain to me that she didn’t want to get better because she was afraid she would lose herself, her identity. A severe mental illness takes over every part of your life, it overwrites everything you are, rests over you like a veil and only outlines and contours of your true self are visible. And when this lasts for years, you eventually forget how it feels without it and who you are without it. When I had my first better phase since my depression began I noticed myself reverting back to behaviours I had not shown in years, character traits that I believed had gone away simply as time moved on suddenly re-emerged. Experiencing this can be truly frightening but it can also be really important. If you are afraid of what you might become if you get better, remember that you are not your illness. Try to stop associating yourself with it and don’t believe that there is any reason to hold on to it. And if you do get better, you will not lose but in fact rediscover who you are.